2024年10月17日 · AL amyloidosis was diagnosed for us in August of 2024. Our first appointment at Mayo Clinic was mid september. Amyloidosis has affected heart, bone marrow, gi tract, and …

2016年3月13日 · My main symptoms was : severe intrahepatic cholestatic jaundice, shortness of breath, my liver was 5 times the normal size. Just prior to my chemo treatments, my liver …

2022年7月14日 · AL (primary) amyloidosis can be systemic (throughout the whole body) and can affect organs like heart, kidneys, liver, spleen, nervous system and digestive tract. Treatments …

2022年7月14日 · My mom was recently diagnosed w AL Amyloidosis, our local hospital missed some important tests . We just had our first trip to Mayo. I feel now that my mom is …

2023年3月9日 · That is how my AL Amyloidosis was diagnosed. It is a rare plasma cell disorder that is a "cousin" to Multiple Myeloma. There are other discussions about AL Amyloidosis and …

2018年8月22日 · AL amyloidosis Posted by devineone @devineone , Aug 22, 2018 My husband is an ESRD patient for 3 years on hemodialysis recently he was diagnosed with AL Amyloidis …

2021年4月12日 · My dad was recently diagnosed with AL Amyloidosis. We live in northcentral WI and he is ready to take a step up in the level of specialty care. We are considering Mayo …

2024年7月17日 · Hi @suebridges123.From my understanding, Al Amyloidosis is caused by a bone marrow disorder. In AL patients, some plasma cells in the bone marrow produce an …

2016年9月8日 · My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily in people's age in the 60s. My wife developed it at 68. That blood borne …

2023年8月28日 · Below are just a few of the many conversations where you can meet other members who have Al-Amyloidosis such as @countrygirlusa @blackscarecrow @jenrico …