The Rare Coagulation Disorders Resource Room (https://rarecoagulationdisorders.org/), a dynamic, open-access website, was developed through a collaboration of the international …

The Rare Bleeding Disorders Database (RBDD) is a registry whose mission is to set up a network of treatment centers dealing with rare bleeding disorders (RBDs) with the goal of developing a …

PRO-RBDD is an international collaborating network that has developed a web database designed to prospectively collect clinical and laboratory data of patients with coagulation factor …

Conclusion The PRO-RBDD study suggests a FXIII coagulant activity level of 15 IU dL -1 as a target to start prophylaxis in order to prevent major bleedings, such as central nervous system …

Rare bleeding disorders (RBDs) are autosomal recessive disorders, representing 3–5% of all the inherited deficiencies of coagulation factors. Their frequency in the general population ranges …

Explore the Rare Coagulation Resource Room, providing valuable information on rare bleeding disorders. Learn about basic science, clinical management & more.

2015年3月26日 · Rare inherited bleeding disorders (RBDs), including deficiencies of coagulation factors fibrinogen, factor (F)II, FV, combined FV and FVIII, FVII, FX, FXI, FXIII, and congenital …

Rare Coagulation Disorders Resource Room, an extension of the RBDD Registry (eu.rbdd.org), was developed in collaboration with the Indiana Hemophilia & Thrombosis Center …

2014年12月6日 · The PRO-RBDD is a prospective study of fibrinogen and FXIII deficiency designed to collect data on demographics, laboratory phenotype, genotype, clinical …

2017年9月1日 · Congenital factor XIII (FXIII) deficiency is a rare bleeding disorder associated with significant bleeding manifestations. The European Network of Rare Bleeding Disorders …