The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven ...

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national ...

EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.

ECRD 2024 represented a great opportunity to translate political momentum into comprehensive actions for the EU’s new cohort of policymakers and leaders. The ECRD 2024 programme did this by addressing the key policy areas that form part of a broader policy framework.

2024年5月15日 · The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven ...

Innovative funding strategies/models and funding challenges to support research, development and treatments on ultra-rare/rarer diseases. Evidence generation for treatments and therapies of ultra-rare/rarer diseases.

2022年6月27日 · The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an ...

ECRD 2024 will be a melting pot of ideas and collaboration, with over 1,000 participants expected – hundreds gathering in Brussels, and hundreds more logging in from every corner of the globe. Patients will share success stories and detail enduring challenges with key players and identify opportunities to shape improved future policies.

2022年6月27日 · The next ECRD will take place fully online from 27 June to 1 July 2022. This 11th edition follows a pivotal two-year Rare 2030 Foresight Study, supported by the European Parliament and European Commission, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030.

2020年5月14日 · The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to …