The European Joint Programme on Rare Diseases (EJP RD) was a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease.

The EU-cofunded EJP RD project (130 institutions, 35 countries) is developing an effective RD research ecosystem to address this issue. It improves the integration, effectiveness and social impact of RD research by developing, demonstrating and promoting Europe/world-wide research, and sharing clinical data, resources, procedures, knowledge and ...

The Virtual Platform (VP) is a growing network of Findable, Accessible, Interoperable and Reusable (FAIR) resources, ready to serve the rare disease (RD) research community. It includes catalogues of resources, registries, biobanks, knowledge bases …

2024年6月23日 · EJP RD (2019-2024) aims to establish an effective research ecosystem for rare diseases (RD), promoting progress and innovation to benefit patients . This initiative unites over 130 institutions from 35 countries, exemplifying cooperative efforts between Member States and a range of (above-mentioned) stakeholders including research funders ...

What is EJP RD? The European Joint Programme on Rare Diseases (EJP RD) consortium brings over 130 institutions from 35 countries (27 EU countries, 7 associated, and Canada) to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care, and medical innovation on rare diseases.

2019年1月1日 · To achieve this goal, the European Joint Programme on RD (EJP RD) has two major objectives: (i) To improve the integration, the efficacy, the production and the social impact of research on RD through the development, demonstration and promotion of Europe/world-wide sharing of research and clinical data, materials, processes, knowledge and know ...

The European Joint Programme on Rare Diseases (EJP RD) has two major objectives: (i) To improve the integration, the efficacy, the production and the social impact of research on RD through the development, demonstration and promotion of European/ world-wide sharing of research and clinical data, materials, processes, knowledge and know-how;

This is a compilation of all the guidance for the FAIRification process developed or suggested within the EJP RD 1

The EJP RD Virtual Platform network is an ecosystem of data resources and services related to rare diseases, that allows researchers and other stakeholders to easily find, access, and use data for different purposes, such as discovering and analysing it.

2019年10月1日 · The EJP RD is a 5-year programme co-funded by the European Commission to create a comprehensive and sustainable ecosystem for rare disease (RD) research. Rather than conduct research on RDs, the programme will build the network, infrastructure and digital platforms that will promote cross-border sharing of clinical data, resources and know-how ...