What is MDS? - MDS Foundation
Myelodysplastic Syndromes (MDS) are a group of diverse bone marrow disorders in which the bone marrow does not produce enough healthy blood cells. MDS is often referred to as a "bone marrow failure disorder". MDS is primarily a disease of the elderly (most patients are older than age 65), but MDS can affect younger patients as well.
MDS Foundation | MDS is a bone marrow failure disorder
Phone within the US: 1-(800)-637-0839 Outside the US only: 1-609-298-1035 Fax: 1-609-298-0590 e-mail [email protected]
Myelodysplastic Syndromes (MDS) | Aplastic Anemia and MDS …
Studies suggest that 12,000 to 15,000 MDS cases are newly diagnosed annually in the U.S., and an estimated 50,000 to 75,000 people currently live with MDS. The exact number of people living with MDS is unknown. To understand MDS, you must …
Young Investigator Grants | MDS Foundation
The overarching goal is to identify novel treatment options in SF3B1mt MDS with ring sideroblasts, where median overall survival is ~5 years. We will explore HSPC biology through state-of-the-art multiomics approaches and validate our discoveries using disease models to ultimately pave the way for targeted treatment of SF3B1mt MDS-RS.
MDS Toolkit - Aplastic Anemia and MDS International Foundation …
Myelodysplastic Syndromes (MDS) are challenging for both health care providers and patients to understand and explain. It can be overwhelming to be faced with the diagnosis of a rare disease like MDS, so it’s important to have clear descriptions of the disease information you need wherever you are in your MDS journey.
How long do I have to live? | Aplastic Anemia and MDS …
Because each person is unique, and each person’s disease is different, a prognosis can be difficult to make. Also, how a disease progresses over time is unpredictable, and less is known about rare diseases than common diseases. Whether you are an aplastic anemia, MDS or PNH patient, you need to talk to your doctor about your prognosis. This ...
About Us - MDS Foundation
The MDS Foundation is a global non-profit advocacy organization that for over 30 years has supported patients and their families as well as healthcare providers in the fields of MDS and its related diseases.
Aplastic Anemia and MDS International Foundation (AAMDSIF)
Aplastic Anemia and MDS International Foundation. Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare ...
Message Board | MDS Foundation
The MDS Message Board is an online community where individuals affected by MDS—patients, caregivers, and loved ones—can connect and share their experiences. It's designed to foster support and provide valuable resources for everyone on the MDS journey.
MDS Symptoms - Aplastic Anemia and MDS International …
The symptoms of MDS, also known as Myelodysplastic Syndromes, vary from person to person.Specific symptoms depend on which blood cell types are affected and how low blood counts have fallen.