The Max Foundation (Max) and the International PNH Interest Group (IPIG) Announce Collaboration to Improve Care and Management for People Living with Paroxysmal Nocturnal Hemoglobinuria (PNH) in Low-Resource Countries. More about the announcement

The International PNH Interest Group (IPIG) PNH Registry is an international, observational database collecting real-world health information about PNH patients over time. The registry is owned and managed by IPIG, a not-for-profit network of international PNH experts dedicated to improving care and treatment for PNH patients.

2024年8月7日 · The International Paroxysmal Nocturnal Hemoglobinuria (PNH) Interest group (IPIG) is recruiting patients with PNH for their new observational database. The IPIG is a nonprofit network of global experts in PNH with the aim of improving care and treatment for this condition.

2023年4月19日 · The International PNH Interest Group (IPIG) is planning its first-ever scientific symposium, to take place May 18-19, 2023, in Great Britain.

2005年12月1日 · The International PNH Interest Group is composed of approximately 60 physicians and investigators who have a special interest in the disease. This paper represents the efforts of the group to develop guidelines for the diagnosis and management of PNH.

2017年12月13日 · The International PNH Interest Group (IPIG) has classified disease with PNH clones into 3 subtypes: classical PNH, which includes hemolytic and thrombotic patients who have evidence of PNH clones in the absence of another bone marrow failure disorder; PNH in the context of other primary bone marrow disorders, such as AA and MDS; and subclinical ...

2024年12月18日 · IPIG joins Max's Humanitarian Partnership for Access to Critical Treatments (Humanitarian PACT) and will provide medical education and training on PNH care and...

The International PNH Interest Group (IPIG) is the only global professional society that focuses specifically on PNH and its treatment. IPIG is dedicated to enhancing and expanding professional knowledge about PNH and related disorders to improve patient treatment and care.

2024年7月23日 · 国际 PNH 兴趣小组 (IPIG) 注册中心的目的是开发一个国际数据库，前瞻性地收集 PNH 患者的数据，涵盖所有入组患者的临床结果、患者报告结果 (PRO) 和卫生资源利用 (HRU)，以及长期安全数据。 国际 PNH 兴趣小组 (IPIG) PNH 登记处是一个国际观察性数据库，收集有关 PNH 患者的真实健康信息。 该注册中心由 IPIG 所有和管理，IPIG 是一个由国际 PNH 专家组成的非营利网络，致力于改善 PNH 患者的护理和治疗。 一些制药合作伙伴正在与 IPIG 合 …

The 2nd International PNH Interest Group (IPIG) Conference is taking place in Paris, France, on May 15-16, 2025. This meeting will bring together leading experts in the field of PNH to share the latest research, advancements, and insights.