The European Joint Programme on Rare Diseases (EJP RD) was a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of …

The EU-cofunded EJP RD project (130 institutions, 35 countries) is developing an effective RD research ecosystem to address this issue. It improves the integration, effectiveness and social …

The Virtual Platform (VP) is a growing network of Findable, Accessible, Interoperable and Reusable (FAIR) resources, ready to serve the rare disease (RD) research community. It …

2024年6月23日 · EJP RD (2019-2024) aims to establish an effective research ecosystem for rare diseases (RD), promoting progress and innovation to benefit patients . This initiative unites …

What is EJP RD? The European Joint Programme on Rare Diseases (EJP RD) consortium brings over 130 institutions from 35 countries (27 EU countries, 7 associated, and Canada) to create …

2019年1月1日 · To achieve this goal, the European Joint Programme on RD (EJP RD) has two major objectives: (i) To improve the integration, the efficacy, the production and the social …

The European Joint Programme on Rare Diseases (EJP RD) has two major objectives: (i) To improve the integration, the efficacy, the production and the social impact of research on RD …

This is a compilation of all the guidance for the FAIRification process developed or suggested within the EJP RD 1

The EJP RD Virtual Platform network is an ecosystem of data resources and services related to rare diseases, that allows researchers and other stakeholders to easily find, access, and use …

2019年10月1日 · The EJP RD is a 5-year programme co-funded by the European Commission to create a comprehensive and sustainable ecosystem for rare disease (RD) research. Rather …