Welcome to the VHL UK/Ireland website. Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.

Visit the VHL UK/Ireland Charity Homepage. Charity Objectives: To relieve the charitable needs of persons who have von Hippel-Lindau Syndrome (VHL) and similar genetic conditions such as …

VHL UK/Ireland Charity Objectives: To relieve the charitable needs of persons who have von Hippel-Lindau Syndrome (VHL) and similar genetic conditions such as Hereditary …

VHL (von Hippel-Lindau) disease. von Hippel-Lindau (VHL) disease patients battle a series of malignant and benign tumours their whole lives. The VHL gene is involved in many other …

VHL is a rare disorder caused by a faulty gene. It is named after the two doctors who first described the disease, and affects about one in 35,000 people. Tumours develop in one or …

Carer centres and services - Official information from NHS about VHL UK/Ireland including contact, directions and service details

2022年2月19日 · Von Hippel-Lindau (VHL) disease is an inherited tumour predisposition syndrome and a paradigm for the importance of early diagnosis and surveillance. However, …

2024年9月5日 · NICE has recommended belzutifan for some adults with Von Hippel-Lindau disease, in final draft guidance, which could benefit up to 100 people. Von Hippel-Lindau …

2024年12月29日 · Charity for people living with von Hippel Lindau (VHL) syndrome and similar genetic conditions. It offers education, support and advice including a free to download …

2020年12月10日 · Read the guidelines from 2018 on VHL Screening presented by Dr Richard Sandford, Eamonn Maher and Fiona Lalloo. VHL should be suspected in individuals with or …