The Max Foundation (Max) and the International PNH Interest Group (IPIG) Announce Collaboration to Improve Care and Management for People Living with Paroxysmal Nocturnal Hemoglobinuria (PNH) in Low-Resource Countries. More about the announcement

The 2nd International PNH Interest Group (IPIG) Conference is taking place in Paris, France, on May 15-16, 2025. This meeting will bring together leading experts in the field of PNH to share the latest research, advancements, and insights.

2023年4月19日 · The International PNH Interest Group (IPIG) is planning its first-ever scientific symposium, to take place May 18-19, 2023, in Great Britain.

The International PNH Interest Group (IPIG) PNH Registry is an international, observational database collecting real-world health information about PNH patients over time. The registry is owned and managed by IPIG, a not-for-profit network of international PNH experts dedicated to improving care and treatment for PNH patients.

2024年6月26日 · 阵发性睡眠性血红蛋白尿（PNH）是一种罕见且危及生命的血液疾病，其特征是由补体末端途径（TP）和替代途径（AP）的效应因子介导的血管内（IVH）和血管外溶血（EVH）。 KP104是一种新型的双功能重组融合蛋白，由人源化抗C5单克隆抗体和补体调节因子H的N末端功能域组成，能够同时抑制TP和AP。 在II期研究（NCT05476887）的中期分析中，KP104在既往未接受补体抑制剂治疗的PNH患者（n=18）中展示出了良好的安全性，并在 …

2005年12月1日 · The International PNH Interest Group is composed of approximately 60 physicians and investigators who have a special interest in the disease. This paper represents the efforts of the group to develop guidelines for the diagnosis and management of PNH.

2024年12月18日 · IPIG joins Max's Humanitarian Partnership for Access to Critical Treatments (Humanitarian PACT) and will provide medical education and training on PNH care and...

The International PNH Interest Group (IPIG) is the only global professional society that focuses specifically on PNH and its treatment. IPIG is dedicated to enhancing and expanding professional knowledge about PNH and related disorders to improve patient treatment and care.

The IPIG Conference 2023 celebrates faculty and industry partners for their contributions towards advancing treatment and care for those with paroxysmal nocturnal hemoglobinuria. Join us in our mission to provide education, information, and support for healthcare providers and researchers in the field of PNH.

International PNH Interest Group (IPIG) Conference 2023 Exposure-Response Analyses of Pegcetacoplan in Patients With Paroxysmal Nocturnal Hemoglobinuria Access Resources